Elizabeth Zakutansky of Hobart, Ind., was born with a rare genetic condition that causes multiple seizures. Her health care is covered by Medicaid, but the program pays out-of-state doctors and hospitals less than those in Indiana, forcing the family to pay out-of-pocket for some of her care.

Elizabeth Zakutansky of Hobart, Indiana, was born with a rare genetic condition that causes multiple seizures. Her health care is covered by Medicaid, but the program pays out-of-state doctors and hospitals less than those in Indiana, forcing the family to pay out-of-pocket for some of the care she needs, says her mother, Laura. (Laura Zakutansky)